to Publish Notice of Funding Opportunity Announcements for a Down Syndrome Clinical Cohort Coordinating Center (DS-4C) for the INCLUDE Project
November 1, 2023
State governments, County governments, Independent school districts, Public & State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities, Native American tribal organizations, Nonprofits (with 501(c)(3) status), Private institutions of higher education
This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects. TheNIH INCLUDE Project seeks to improve health and quality-of-life for individuals with Down syndrome.The National Institutes of Health, Office of the Director, with other NIH Institutes and Centers (ICs) (NICHD, NHLBI, NIA, NIDCD, NIMH etc.), intends to publish a Notice of Funding Opportunity (NOFO) to solicit applications for a Down Syndrome Clinical Cohort Coordinating Center (DS-4C). The DS-4C will be responsible for overall project coordination and outreach, support development of new cohorts of people with Down syndrome, and curate the metadata from the new cohorts. A companion NOFO ( NOT-OD-23-134 ) will support the coordinating center. A related NOFO ( NOT-OD-23-136 ) will support a federated biobanking system for the INCLUDE Project. The DS-4C will be a cooperative program committed to support the Down syndrome cohort development program. The DS-4C will provide overall management and oversight for the DS cohort development program, including coordination and communication across all subsections and cores of the program; most importantly, it will lead the effort to outreach to a broader DS community to increase Diversity, Equity, Inclusion and Accessibility (DEIA) within the DS cohort. The DS-4C is expected to work closely with the INCLUDE data repository maintained by theINCLUDE Data Coordinating Center (DCC).