to Publish Notice of Funding Opportunity Announcements for a Federated Biobanking resource for the Down Syndrome Cohort Study Program (DS-CDP) across the lifespan for the INCLUDE Project
November 1, 2023
State governments, County governments, Independent school districts, Public & State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities, Native American tribal organizations, Nonprofits (with 501(c)(3) status), Private institutions of higher education
This Notice is being provided to establish an infrastructure to facilitate coordination, collection, management, and dissemination of biospecimen materials to advance clinical research of co-occurring conditions in individuals with Down Syndrome (DS). This effort is intended to leverage NIH's investment in the INCLUDE Project, the INCLUDE Data Coordinating Center (DCC), and support for current NIH-funded Down syndrome biospecimen repositories. The National Institutes of Health, Office of the Director, with other NIH Institutes and Centers (ICs) (NICHD, NHLBI, NIA, NIDCD, NIMH etc.), intends to publish a Notice of Funding Opportunity (NOFO) to solicit applications for a Federated Biospecimen Repository. The Federated Biospecimen Repository will use a cooperative mechanism. In addition, therewill be a companion NOFO for the Down Syndrome Cohort Research Sites (DS-CRS) and the Down Syndrome Clinical Cohort Coordinating Centers (DS-4C) within the Down Syndrome Cohort Development Program (DS-CDP) (for details see: NOT-OD-23-134; NOT-OD-23-135 ).