to Publish Notice of Funding Opportunity Announcements for Down Syndrome Cohort Research Sites (DS-CRS) for the Down Syndrome Cohort Study Program (DS-CDP) across the lifespan for the INCLUDE Project
November 1, 2023
State governments, County governments, Independent school districts, Public & State controlled institutions of higher education, Native American tribal governments (Federally recognized), Public housing authorities, Native American tribal organizations, Nonprofits (with 501(c)(3) status), Private institutions of higher education
This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects. TheNIH INCLUDE Project seeks to improve health and quality-of-life for individuals with Down syndrome.The National Institutes of Health, Office of the Director, with other NIH Institutes and Centers (ICs) (NICHD, NHLBI, NIA, NIDCD, NIMH etc.), intends to publish a Notice of Funding Opportunity (NOFO) to solicit applications for Down Syndrome Cohort Research Sites (DS-CRS) to participate within a Down Syndrome Cohort Development Program (DS-CDP). The DS-CDP will be a cooperative program committed to theassembly of a diverse cohort of people with Down syndrome (DS). The DS-CRS will serve to identify and enroll people with Down syndrome into a common diverse cohort. DS-CRS will work cooperatively with a Down Syndrome Clinical Cohort Coordinating Center (DS-4C) that will be responsible for overall management and oversight for the DS-CDP and assuring DS-CRS data is incorporated into the INCLUDE data repository maintained by theINCLUDE Data Coordinating Center (DCC).